Category Archive: LJ’s CDH Updates

Nov
23

LJ – Day 15

So last night at 8:30pm they removed LJ’s nasal cannula, meaning that she has zero oxygen help now. She also ate from a bottle last night in the middle of the night during all three feeds. This is her first night not getting tube fed. They said she ate great via the bottle with no …

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Nov
22

LJ – Day 14 (Exciting News!)

Hey Everyone! So LJ fed all day yesterday pretty well, enough that she didn’t have to be supplemented through her feeding tube, except at night when we are not here so she can sleep. We met briefly with Dr. Kays this morning and he said that he thinks she could probably be discharged from the …

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Nov
21

LJ – Day 13

Well it’s Monday, a start of a new week. Feeding for LJ was slow but progressive yesterday. Today she had a GREAT first feed and we have a lactation specialist helping this morning, which we didn’t have over the weekend. Thanks for your prayers for her feeding. Hopefully she will continue today to do well …

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Nov
20

LJ – Day 12 (Feeding Challenge)

Hey Everyone, Well, we are working on feeding these days. It has been a rough start, but we are making progress, even though it is slow progress. LJ is just trying to get use to learning to feed, when to sleep, and when to eat. Katie and I get to the hospital at about 7:45am …

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Nov
18

LJ – Day 10 (Feeding!)

Hey Everyone, LJ only had to stay on CPAP for about 18 hrs. Now she is just on a normal nasal cannula, which just breaths in oxygen when she breaths. She also got her feeding tube out and had a bottle for the first time this morning! She’s also been sucking on her pacifier a …

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Nov
17

LJ – Breathing On Her Own!

Well, they just removed LJ’s ventilator tube. She is now breathing totally on her own! As you can see in the picture she is on what they call CPAP. It is pushing oxygen through her nose in to make sure she does well with breathing on her own. The HOPE is that she only has …

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Nov
17

LJ – Day 9

Hey Everyone, On my morning visit to see LJ this morning at 6:30am I got there right when they had finished checking her gases. Her gases went down (which is good!). They dropped one of her levels, which is just that much closer to getting off the ventilator. I didn’t see the X-ray this morning …

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Nov
16

LJ – Day 8

Hey Everyone, Here is an update on LJ and a couple of prayer requests we are asking from you. First off, LJ has been in the same place for a couple of days as far as progression. Nothing to be alarmed by, but she still has a lot of fluid in her lungs that needs …

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Nov
15

LJ’s Story

  Hey Everyone, Before LJ was born our prayer was that LJ’s story would be used to change lives, whether God allowed her to live or not. Well, it seems God is allowing both to already happen. This past Sunday my mentor, Justin Grunewald, preached a message at Buckhead Church in Atlanta and told LJ’s …

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Nov
15

LJ – Day 7

Hey Everyone, I know I haven’t been great at updating the blog everyday, but no news is good news right? LJ has just been slowly coming down on her gas levels (Oxygen, etc) and sedation/pain meds. Shes actually being a little sluggish still from the sedation and so they are trying to get her moving …

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