Category Archive: LJ’s CDH Updates

Dec
23

MERRY CHRISTMAS FROM THE HORTONS!

Dec
04

Back in Dallas!

Hey Everyone, Sorry I have yet again been behind on the blog. It was a crazy journey getting back to Dallas. After 1100 miles in 20 hrs, while pulling a trailer, we made it back safely. Words can not express how we felt when we got in our apartment with our daughter. Our apartment is …

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Dec
02

Headed for the Great State of TEXAS!

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Well, the car and trailer are loaded and we are headed for the great state of Texas! Looking forward to getting home after 2 months. 900 mile trip here we come!

Nov
30

LJ – Out of the Hospital!

Well, we left the hospital last night at around 6pm, EST. Yesterday LJ was exactly 3 weeks old. Words can not express how happy we were to leave. It was almost surreal. We did have some bittersweet feelings about leaving, especially all the wonderful nurses, since we had been there for 3 weeks, day in …

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Nov
29

LJ – GOING HOME!!!!!

So we just found out that another doctor looked at the MRI and feels very confident that the blood clot in LJ’s brain is going away. So they are discharging us today! They aren’t even saying we have to get a follow up MRI! However, we have asked for a referral to get one in …

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Nov
29

LJ – Brain Blood Clot Update

Hey Everyone, We just heard from one of the doctors and the second MRI from last night shows that half of the clot has almost completely gone away and the other half seems either the same or gone down a hair. The side that is still there has some flow through it so it isn’t …

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Nov
28

LJ – Not going home yet

We just found out that they are wanting to do another MRI on LJs blood clot in her brain. The hope is that it has gone down. If it has they won’t do treatment in hopes it will go away on its own. If it has stayed the same or gotten worse she will get …

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Nov
28

LJ – Last Day

Hey Everyone, Sorry for not postings since Thanksgiving Day. Today is LJ’s last day here! We are suppose to be discharged this afternoon! We are waiting on a doctor (since Thursday) to look at LJ’s MRI that shows a blood clot in her brain. They think it is nothing, but wanted this certain doctor to …

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Nov
24

LJ – Happy Thanksgiving

Well…it’s Thanksgiving Day. We are 900 miles away from home and we are in a hospital surrounded by crying babies. Yet, it’s the best Thanksgiving Day I’ve ever had. I get to spend it with my two favorite girls on the whole planet. On top of that, my daughter is tube free and waiting to …

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Nov
23

LJ – No Tubes & NICU 2

Hey Everyone, Earlier today they took out LJ’s last tube, her feeding tube. She now is tube FREE! She also got moved from the NICU 3 to the NICU 2 tonight, which is the step down unit. We were hoping to stay at the NICU 3 until going home, but they had to make room …

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